Sugar House Park
1330 2100 S
Salt Lake City
I’m Morgan Pratt – the Chapter Head for the Huntington’s Disease Society of America Utah Chapter. I was diagnosed with Huntington’s Disease last June. It’s a rare fatal neurological and movement disorder. Not only am I in the fight for my life, but I’m doing what I can to raise awareness about the disease and to raise money so scientists can fight to find a cure for Huntington’s Disease – HD for short. We are having our biggest fundraiser of the year next week and would love to have you attend. Check out the details below.
OCT. 19 @ SUGAR HOUSE PARK
5-6 pm: Utah Team Hope Walk
Members of the community will walk around Sugar House Park to raise awareness about HD and to commemorate those lives lost to the disease.
6-8 pm: Halloween Carnival & Trunk or Treat
In addition to raising money for the HDSA, our family-friendly Halloween Carnival & Trunk or Treat serves the greater community. We’ll have a bounce house, glitter hair, games, candy, prizes, an auction, and so much more. What is a Trunk or Treat? It’s just like Trick or Treating, but instead of kids going from house to house they go from trunk to trunk asking for candy. Nearly one-thousand people attended last year’s Trunk or Treat. We hope to have more in attendance this year. Click here to learn more about the Trunk or Treat.
What is Huntington’s Disease?
Huntington’s Disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene that causes the disease. I got it from my mom, Tanya Pratt – she got it from her dad. My mom passed away in her early 40s. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
What is the Huntington’s Disease Society of America Utah Chapter?
The HDSA Utah Chapter is the premier not-for-profit organization dedicated to improving the lives of everyone affected by HD. We’re dedicated to supporting everything from community services and education to advocacy and research.
Feel free to call, text, or email me if you have any questions about HD. I’m happy to connect you to those who currently face the disease in their day-to-day lives.